The Pulse -March 2019 Archive
The Pulse is a summary of relevant news and articles for Congenital Heart Professionals and highlights:
ACHD Echo Protocols
Featured Reading
New Editor for the ACHD Learning Center
Congenital Cardiology Today Latest Issue
ACHA Webinar
Note Registry
Recruitment Opportunities
CHIP Network Partner Organizations
Congenital Cardiology Today - Latest Issue ACHD Echo Protocols
Congenital Cardiology Today is the only worldwide monthly publication exclusively serving Pediatric and Adult Cardiologists that focus on Congenital/Structural Heart Disease (CHD), and Cardiothoracic Surgeons.

What's Been Happening?
Pediatric Cardiology Links
- Consensus recommendations for echocardiography in adults with congenital heart defects from the International Society of Adult Congenital Heart Disease (ISACHD)
Google Alerts: PRNewswire (press release) - Q&A: Transition to adult congenital heart care must be managed carefully
Google Alerts: Imaging Technology News (press release) (blog) - Iron supplementation helps in improving mortality in 'blue babies' and adults: Study
Google Alerts: The Indian Express - AMA to HHS: HIPAA changes aren't needed for care coordination — 9 notes
Google Alerts: Becker’s Health IT and CIO Report - Updated information on congenital heart disease published for parents
Google Alerts: PHE Screening - GOV.UK blogs - ATS publishes new clinical guideline on home oxygen for children
Google Alerts: Medical Xpress - VIDEO: New Echo Technology to Evaluate the Fetal Heart
Google Alerts: DAIC - Congenital Methemoglobinemia Identified by Pulse Oximetry Screening
Google Alerts: AAP News - Report finds deep links between heart disease and brain impairment
Google Alerts: CBC.ca - Heart disease, stroke and cognitive decline have deep connections, says report
Google Alerts: Ottawa Citizen - A novel model demonstrates variation in risk-adjusted mortality across pediatric cardiac ICUs after surgery
Google Alerts: MD Linx - CDC: screening policies for critical congenital heart disease widespread
Google Alerts: Medical Xpress - $26m boost for research into kids' heart conditions
Google Alerts: Herald Sun - Short-Term Exposure to General Anesthesia in Infancy Does Not Affect Neurodevelopment
Google Alerts: Neurology Advisor - Updated AHA Scientific Statement Addresses CV Risk Reduction in High-Risk Youth
Google Alerts: TCTMD - Caring for Kids: Advocating for children's heart health; those with autism; children's charities
Google Alerts: Crain's Detroit Business - Gutwein works to add rare, deadly disease to newborn screening panel
Google Alerts: Newsbug.info - Obesity a Heartbreaker for Kids
Google Alerts: U.S. News & World Report - Outcomes and risk factors of massive and submassive pulmonary embolism in children: a retrospective cohort study
Feedly: The Lancet - Someday, a Pig's Heart Might Save a Child's Life
Feedly: US News & World Report - A quarter of all kindergartners in this county in Washington aren’t immunized. Now there’s a measles crisis
Feedly: USA Today - Nearly 1 in 7 US kids and teens has a mental health condition, and half go untreated, study says
Feedly: CNN - As U.S. Measles Outbreaks Spread, Why Does 'Anti-Vax' Movement Persist?
Feedly: HealthDay - The silence of sickle cell disease Research at Children's Hospital Los Angeles brings us closer to understanding an elusive complication of sickle cell disease -- the silent stroke
Feedly: EurekAlert
Children’s Hospitals Links
- AMA to HHS: HIPAA changes aren't needed for care coordination — 9 notes
Google Alerts: Becker’s Health IT and CIO Report - Best Hospitals for Children With Severe Congenital Heart Disease
Google Alerts: U.S. News & World Report - Dr. Paul F. Kantor Named New Cardiology Chief and Heart Institute Co-Director at Children's Hospital of Los Angeles
Google Alerts: Associated Press (press release) (blog) - Sick Kids rebuilding project kicks off with 22-storey office tower
Google Alerts: The Star - The Best Heart Hospital in Every State
Google Alerts: Reader's Digest - Johns Hopkins All Children's deaths spur bill calling for more oversight
Google Alerts: Becker's Hospital Review - Children's of Alabama launches remote-monitoring app for pediatric patients
Google Alerts: Becker's Hospital Review - Robert H. Pass, MD, Appointed Division Chief of Pediatric Cardiology, Co-Director of the Children's Heart Center, and Director of Pediatric Electrophysiology, the Mount Sinai Health System
Google Alerts: Mount Sinai - Ohio Hospital Ends Use of Cats for Airways Procedure Class
Feedly: US News & World Report - Patients want private rooms, and hospitals are accommodating them
Feedly: The Boston Globe - Cost of national children’s hospital
Feedly: The Irish Times - Children’s hospital contractor will quit troubled ¤1.7bn project if asked
Feedly: The Times - MUSC has taken on about $1 billion in expansion projects. Here’s how they’re affording it.
Feedly: Charleston Post Courier - UPMC Children's Hospital doctor predicts final AFM count in U.S. will be even higher
Feedly: Pittsburgh Post-Gazette - Johns Hopkins All Children's submits corrective plan to CMS amid safety lapse probe
Feedly: Becker’s Hospital Review - Baptist Health, Wolfson Children's partner for $187M expansion
Feedly: Becker’s Hospital Review - Nationwide Children’s Hospital taps new leader
Feedly: The Columbus Despatch - Johns Hopkins All Children's Hospital Names Interim President
Feedly: Florida Trend - Children’s hospital: cost grows as McDonald’s refused naming rights
Feedly: Irish Times - VCU to break ground on $350M children’s hospital expansion this spring
Feedly: Richmond BizSense - 100 hospital and health system CIOs to know | 2019
Feedly: Becker’s Hospital Review - CHOA VP shares the latest on its $1.5 billion campus
Feedly: Atlanta Business Chronicle - Perth Children's Hospital's troubled history
Feedly: Perth Now - Mayo Clinic teams up with Leidos to build accelerator, Save the Children taps EarlySense for pilot program and other digital health deals
Feedly: Mobile Health News - Feds find Johns Hopkins All Children's put patients in jeopardy, hospital may lose Medicare funds
Feedly: Tampa Bay Business Journal - For sale: 10-acre Shriners Hospital complex overlooking Mississippi River
Feedly: St. Paul Pioneer Press - Health committee set to press Harris on children’s hospital overspend
Feedly: The Irish Times - We need doctors and nurses more than a new children’s hospital
Feedly: The Irish Times - Dr. Paul F. Kantor Named New Cardiology Chief and Heart Institute Co-Director at Children’s Hospital Los Angeles
Feedly: Associated Press
Science Links
- Heart-Lung vs Double-Lung Transplant Outcomes in Pulmonary Hypertension
Google Alerts: Pulmonology Advisor - Whole-exome sequencing in the evaluation of fetal structural anomalies: a prospective cohort study
Feedly: The Lancet - Scientists at Children’s Hospital Los Angeles Investigate How Blood Flow in the Brain is Affected by Autism
Feedly: Associated Press
Health Academics and Politics Links
- Top doctor fears hard border could put children at risk
Google Alerts: BBC News - GPs urged to plan for no deal Brexit but warned against stockpiling drugs
Google Alerts: The Irish News
Cardiomyopathy Links
- Someday, a Pig's Heart Might Save a Child's Life
Feedly: US News & World Report - New research insights hold promise for kids with DMD Experimental drug shows promise for simultaneously treating inflammation and heart disease in experimental models
Feedly: Science Daily - Association of sST2 serum levels with outcomes in pediatric dilated cardiomyopathy
Google Alerts: MD Linx - Do all chemotherapies have equal long-term heart risk? Study of 28,000 childhood cancer survivors finds important differences
Feedly: Science Daily
Marfan Links
Adult Congenital Heart Disease
- ASE Releases Guidelines for Transesophageal Echo in Congenital Heart Disease
Google Alerts: Imaging Technology News (press release) (blog) - Iron supplementation helps in improving mortality in 'blue babies' and adults: Study
Google Alerts: The Indian Express - AMA to HHS: HIPAA changes aren't needed for care coordination — 9 notes
Google Alerts: Becker’s Health IT and CIO Report - Adult Congenital Heart Disease Consultant
Google Alerts: BMJ Careers - Consultant in Adult Congenital Cardiology
Google Alerts: BMJ Careers - Prognostic value of soluble ST2 in adults with congenital heart disease
Google Alerts: MD Linx - A Model for Assessment of Catheterization Risk in Adults With Congenital Heart Disease
Google Alerts: American Journal of Cardiology - Machine Learning Estimates Prognosis in Adult Congenital Heart Disease
Google Alerts: Medical Bag
General Interest Links
- Stanford Children’s Health virtual appointment initiative increases more than twofold in 2019
Feedly: The Stanford Daily - McGill's Maude Abbott Medical Museum opens its collection to the public
Google Alerts: University Affairs - Women in healthcare underrepresented in leadership roles, earn less than men
Google Alerts: MultiBriefs Exclusive (blog) - Lack of women CEOs is a problem for healthcare, Oliver Wyman says
Feedly: Healthcare IT News
International Links
- Fast track extubation in paediatric cardiothoracic surgery in developing countries
Google Alerts: Pan African Medical Journal - Congenital Heart Disease in Canada
Google Alerts: OpenParliament.ca - Iron supplementation helps in improving mortality in 'blue babies' and adults: Study
Google Alerts: The Indian Express
Human interest Stories
- Vanguard's Founder: A Force of Nature
Google Alerts: Wall Street Journal - Ashton Kutcher Almost Made The Ultimate Sacrifice For His Brother
Feedly: Shared - She Had Open-Heart Surgery—and Vows to Qualify for the 2020 Olympic Marathon Trials
Feedly: Runner’s World
Featured Reading
Featured Reading
Intensive Care of The Adult with Congenital Heart Disease
This comprehensive book discusses the many challenges faced in the management of congenital heart disease patients and attempts to provide the first universal review of the practical management of patients with these complex conditions.
Interested in this New Textbook?
AIMed Magazine #06 – Augmented Reality & Virtual Reality
The sixth issue of AIMed Magazine, the ultimate compendium of clinician, technology, and business expertise. In addition to our Deep Dive on Virtual Reality, we are proud to include:
- A New Year’s Reflection by Dr Anthony Chang, MD, MBA, MPH, MS
- Tech Refresher Course by Lela Mirtskhulava, PhD
- We Founded Our Company at AIMed interview with Jack Niel
- Keeping the patient engaged by Matt Eagles
- HIMSS and Arab Health: special feature guide for AI enthusiasts by Siemens Healthineers in partnership with AIMed
ACHA Webinars for Patients and Families
Cardiovascular Health in ACHD Patients:
Are You at Risk?
Wednesday, April 24, 2019, 7 p.m. – 8 p.m. EDT
Presented by: George Lui, MD
About the Webinar
Are you aware that as adults with congenital heart disease age, the risk of developing acquired cardiovascular disease increases? More than 80% of adults with congenital heart disease have been identified to have greater than one cardiovascular risk factor for coronary artery disease. In this webinar, you will learn about the epidemiology of coronary artery disease in adults with CHD, risk factors for acquired cardiovascular disease, and how to manage your personal risk. Learn how weight, physical activity, diet, and blood pressure affect your risk for acquired heart disease.
To view previous webinars and see full schedule click here.
Recruitment Opportunities
ACHD Physicians:
Looking for a change? Great Clinical, Research and Mentorship opportunities abroad. The King Faisal Specialist Hospital and Research Centre is looking for ACHD physicians to join the ACHD program.
Contact :Gruschen Veldtman for details
Joint Fellowship in Adult Congenital Heart Disease (ACHD)
We are seeking International applicants for a two-year fellowship in Adult Congenital Heart Disease (ACHD). This exciting joint program is offered by the University Hospital of Münster, Germany and the Royal Brompton Hospital, London, GB. Both centres are major tertiary referral centres with an excellent track record of clinical care and academic output. The successful applicants will be
expected to spend one year in Münster and one year in London.
Please send your curriculum vitae and a letter of intent, highlighting your previous ACHD experience and especially your motivation to apply for the post to Gerhard Diller (see below). In addition, a reference contact (ideally direct supervisor/head of department) is required. The start of the program is April 2019, but some flexibility exists to accommodate the needs of candidates. We look forward to your applications.
For further information and to apply please contact Dr Diller:
Email: gerhard.diller@ukmuenster.de

Grant Opportunities
Children’s Cardiomyopathy Foundation (CCF) Grant Program
CCF has a grant program, as well as a joint grant programs with the American Academy of Pediatrics and the American Heart Association, promoting research in pediatric cardiomyopathy.
CHIP Network Partner Organizations
Adult Congenital Heart Association Association for European Paediatric and Congenital Cardiology
Asia Pacific Society for ACHD
Asia Pacific Pediatric Cardiac Society
British Congenital Cardiac AssociationCanadian Adult Congenital Heart Network
Children’s Hospital of Philadelphia
Children’s Healthcare of Atlanta
Children’s National Medical Center
Congenital Cardiac Anesthesia Society
Congenital Cardiology Today
Congenital Heart Surgeons Society
International Society for Adult Congenital Heart Disease
Iranian Society of Pediatric Cardiology
Japanese Society for ACHD
Johns Hopkins All Children’s Heart Institute
Pediatric and Congenital Electrophysiology Society
Pediatric Cardiac Society of India
Paediatric Cardiac Society of South Africa
Pan Arab Congenital Heart Disease Association
PCICS
PICS
The Royal Brompton Hospital
Turkish Association of Pediatric Cardiology and Pediatric Cardiac Surgery
World Congress of Pediatric Cardiology and Cardiac Surgery
ACHD Learning Center Announces New Editor
Dr. Jonathan Windram:
New Editor of the ACHD Learning Center
Please join us in congratulating Dr. Jonathan Windram on his appointment as new Editor of the ACHD Learning Center (www.isachdlearningcenter.org). The ACHD Learning Center is a joint venture developed by the Heart Institute at Cincinnati Children’s Hospital Medical Center, in collaboration with the International Society for Adult Congenital Heart Disease (ISACHD), and has become one of the most important resources for educational materials in our field.
Dr. Jonathan Windram, Associate Clinical Professor at the Division of Cardiology, University of Alberta (Canada), is currently pursuing an online Masters in Medical Education at the University of Dundee, United Kingdom.
After completion of his training in Adult Medicine and Cardiology in the United Kingdom, Dr. Windram received his subspecialty training in Adult Congenital Heart Disease at Queen Elizabeth Hospital, Birmingham (UK), under the supervision of Dr. Sara Thorne, and at the Toronto Congenial Cardiac Centre for Adults, Canada, under the supervision of Dr. Erwin Oechslin. He also successfully completed subspecialty training in cardiac MRI at the Hospital for Sick Children, Toronto, under the supervision of Dr. Shi-Joon Yoo.
Dr. Windram has been involved in the development of the ACHD Learning Center for many years. As Editor of the ACHD Learning Center, Dr. Windram will oversee content and educational value of the ACHD Learning Center Website, will promote the ACHD Learning Center as the ‘go-to’ learning portal for ACHD professionals, and coordinate activities with the Pediatric Cardiac Learning Center (www.pediatriccardiaclearningcenter.org), the CHiP Network (www.chip-network.org), and ISACHD (www.isachd.org). The ACHD Learning Center Editor will collaborate directly with the Editor of the Pediatric Cardiac Learning Center, Dr. Justin Tretter. Dr. Windram will start his new position on April 1, 2019.
Dr. Gary Webb will resign as Editor of the ACHD Learning Center as of March 31, 2019. He has developed the ACHD Learning Center, in collaboration with the Editorial Board Members and a very motivated team in Cincinnati, to become a hub of educational material for the ACHD community. On behalf of Cincinnati Children’s, ISACHD, and all of us in this field, we owe Dr. Webb a ‘big thank you’ for his tremendous leadership. We are delighted that Dr. Webb has agreed to assist and support Dr. Windram in his new role during a transition period of 12 months.
Participate in the Note Registry
On behalf of the CHiP Network, thank you for reading!
Sincerely,
Gary Webb, MD
CHiP Network

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